I recently participated in a nationwide (not the United States) healthcare IT planning effort and one recommendation was universal availability of patient portals. Several reviewers commented that patient portal is a loaded term - it implies that clinicians control the data and patients are given a view into it. One person said, “that’s so 10 years ago.” BIDMC has been working with patient/family shared medical records, Open Notes and various consumer-facing apps since 1999. Over that time we've discovered that patients typically do not want raw data, they want something actionable - the tools necessary to assist their navigation through the healthcare process...
data access
See the following -
Private Health Funds Accused of Misusing Patient Data for Commercial Gain
Private health insurers that also own dental surgeries are misusing data obtained through the HICAPS claiming system for commercial benefit, the Australian Dental Association has warned a Productivity Commission inquiry into expanded data sharing. The inquiry, for which submissions close on July 29, is examining the benefits and costs of data being shared more widely between public sector agencies, private sector organisations, the research sector, academics and the community...
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Surescripts Patient Survey Reveals Patient Demand Access to their Medical Records
Health data-sharing technology exists today, yet patients are increasingly frustrated with their healthcare experience, according to a recent survey by Surescripts, the nation’s leading health information network. The 2016 Connected Care and the Patient Experience survey found that patients are particularly dissatisfied with the lack of a central location for their health records as well as the difficulty in accessing and sharing those records. Plus, they’re expecting to see digitized care settings in the very near future through the use of telehealth and other technologies...
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The Blockchain Interview with Jason Goldwater
There are three, initially, that it has the potential to solve. First is access to data. The way that systems have been set up in hospitals or large integrated physician networks is that the data will either reside in a centralized server or now the trend is to reside it in a cloud. That’s fine and that certainly has been effective, but you’re talking about a large consolidation of data in a centralized location. Blockchain is very different because it is what is known as distributed ledger technology...
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The Current State of Open Data in the US Government
In this article I will discuss the importance of open data in government, the current state of open data in government, and what we need to do to implement true open data. When I read an article on the Center for Data Innovation site, Congress Is Stepping Up to Protect Open Data, I was struck by two feelings: elation and surprise... The article links to a 2013 McKinsey report, Open data: Unlocking innovation and performance with liquid information, that says the national open data initiative of "open by default" represents real economic and transparency value for the public. The report points out that there is no assurance that open data will survive the end of the current administration...
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VA Officials Chart Expanded Vision For Blue Button
What began as a simple way to help veterans view their personal health information over the Internet is continuing to snowball into an electronic health record phenomena known as the Blue Button, now used by more than a million patients nationally and gaining wider adoption by certain health care providers. Read More »
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