Ed Fennell
See the following -
Hacking On Health: Open Source For The Rare Disease Community
[...] At first glance, rare diseases seem to only affect a small number of people, but in reality their aggregate impacts close to 30 million patients in the US, and about 25 million in the EU alone. This impact also extends to the millions of caregivers and families, who also feel and live with the disease, just in a different way. Read More »
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Sixth Hackathon On Rare Diseases - SUNY Albany April 12th
The Sixth Hackathon for Rare Diseases will take place on Saturday April 12th at the State University of New York at Albany. This is a follow up of the Fifth Hackathon for Rare Diseases that took place on February 22nd. The goal of the Hackathon is to continue implementing the prototype of a web-based platform for facilitating the information management of members of the Rare Diseases community. A first pass at the prototype is currently available here in Github, under the Apache 2.0 License.
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