“Everyone is doing sequencing, but most people aren’t able to analyze their sequences as well or as quickly as they might want to,” Bedford said. “We’re trying to fill in this gap so that the World Health Organization or the U.S. Centers for Disease Control and Prevention — or whoever — can have better analysis tools to do what they do. We’re hoping that will get our software in the hands of a lot of people”...
Fred Hutchinson Cancer Research Center
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Open Data Projects Win Wellcome Trust, NIH and HHMI Open Science Prize
By Sheryl P. Denker | May 25, 2017
The Open Science Prize, a new initiative from the US National Institutes of Health (NIH), Howard Hughes Medical Institute (HHMI) and the Wellcome Trust, encourages and supports open science approaches that generate benefit to society, advance research and spur innovation. An integral component of the selection process is demonstrated use and generation of open data, so PLOS is proud that this year’s winner of the Open Science Prize is PLOS author and evolutionary, computational biologist Trevor Bedford of the Fred Hutchinson Cancer Research Center in Seattle, Washington...
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Open Science Prize Announces Epidemic Tracking Tool as Grand Prize Winner
Press Release |
Open Science Prize, Wellcome, Howard Hughes Medical Institute , National Institutes of Health |
February 28, 2017
A prototype online platform that uses real-time visualization and viral genome data to track the spread of global pathogens such as Zika and Ebola is the grand prize winner of the Open Science Prize. The international team competition is an initiative by the National Institutes of Health, in collaboration with the Wellcome Trust and the Howard Hughes Medical Institute (HHMI). The winning team, Real-time Evolutionary Tracking for Pathogen Surveillance and Epidemiological Investigation, created its nextstrain.org prototype to pool data from researchers across the globe, perform rapid phylogenetic analysis, and post the results on the platform’s website...
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Open Science Prize Goes to Software Tool for Tracking Viral Outbreaks
Press Release |
Fred Hutch |
February 28, 2017
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Sage Bionetworks Releases First-of-its-Kind Data from Parkinson’s iPhone Study
Press Release |
Sage Bionetworks, mPower |
March 3, 2016
Sage Bionetworks, a nonprofit biomedical research organization, today released an unparalleled dataset that captures the everyday experiences of more than 9,500 people to help speed scientific progress toward treatments for people with Parkinson’s disease. The dataset, which consists of millions of data points collected on a nearly-continuous basis through the iPhone app mPower, will provide researchers with unprecedented insight into the daily changes in symptoms and effects of medication for people with Parkinson’s.
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This Device Could Detect Dozens Of Cancers With A Single Blood Test
Issie Lapowsky | WIRED | October 10, 2014
Early detection, we’re often told, is the surest way to beat cancer...Current diagnostic methods for other cancers are invasive and expensive, so the vast majority of cancer patients never realize they might have cancer until something goes wrong with their health...
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Top 10 Charities That Should Raise a Red Flag for Donors
Press Release |
BBB Wise Giving Alliance (BBB WGA) |
August 24, 2016
Today, BBB Wise Giving Alliance (BBB WGA) released a list of the 10 largest charities (ranked by Fiscal Year 2014 total contributions) that failed to disclose any of the requested information needed to verify the charity’s trustworthiness. The list includes recognizable charities, including Teach for America, U.S. Holocaust Memorial Museum, and National Fish and Wildlife Foundation. A charity’s failure to disclose important information relevant to BBB WGA evaluation should be a red flag for donors, and the BBB WGA urges donors to avoid charities that dodge transparency...
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Yes, You Can Reconcile The Wide Sharing Of Personal Medical Research Data With Greater Participant Control
Glynn Moody | TechDirt | March 15, 2016
Although the benefits of sharing big datasets are well-known, so are the privacy issues that can arise as a result. The tension between a desire to share information widely and the need to respect the wishes of those to whom it refers is probably most acute in the medical world. Although the hope is that aggregating health data on a large scale can provide new insights into diseases and their treatments, doing so makes issues of consent even trickier to deal with. A new study of Parkinson's disease from Sage Bionetworks, which describes itself as a "non-profit biomedical research organization," takes a particularly interesting approach. Unusually, it used an iPhone app to gather data directly from the participants...
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