I recently participated in a nationwide (not the United States) healthcare IT planning effort and one recommendation was universal availability of patient portals. Several reviewers commented that patient portal is a loaded term - it implies that clinicians control the data and patients are given a view into it. One person said, “that’s so 10 years ago.” BIDMC has been working with patient/family shared medical records, Open Notes and various consumer-facing apps since 1999. Over that time we've discovered that patients typically do not want raw data, they want something actionable - the tools necessary to assist their navigation through the healthcare process...
PatientSite
See the following -
Logging On For Life
Beverly Merz | The Atlantic | January 15, 2014
Digital access to medical records empowers patients through better communication, smarter decisions, and continuous health tracking online. Read More »
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What is Patient and Family Engagement?
By John D. Halamka, MD | November 9, 2016