transparency
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Stakeholders Look to Improve C-CDA as FHIR Matures
As the healthcare industry continues to wrestle with interoperability challenges, two standards are poised to play a central role in facilitating the electronic exchange of health information—one is a blunt tool for data sharing, while the other is a surgical instrument. First adopted in 2012 as part of the Office of National Coordinator for Health IT’s 2014 Edition final rule, the Consolidated Clinical Document Architecture (C-CDA) version 1.1—developed through the joint efforts of ONC and Health Level Seven (HL7) International—is now widely used among healthcare providers...
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Stanford Conference To Explore Right To Information And Technology
A global movement has been underway to use innovative technology platforms to record, store, process, and disseminate public information to advance transparency and accountability... Read More »
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StopWatching.Us: Mozilla Launches Massive Campaign On Digital Surveillance
Last week, media reports emerged that the US government is requiring vast amounts of data from Internet and phone companies via top secret surveillance programs. The revelations, which confirm many of our worst fears, raise serious questions about individual privacy protections, checks on government power and court orders impacting some of the most popular Web services. Read More »
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Strengthening Protection of Patient Medical Data
Americans seeking medical care expect a certain level of privacy. Indeed, the need for patient privacy is a principle dating back to antiquity, and is codified in U.S. law, most notably the Privacy Rule of the 1996 Health Insurance Portability and Accountability Act (HIPAA), which establishes standards that work toward protecting patient health information. But the world of information is rapidly changing, and in this environment, U.S. rules fall precariously short in protecting our medical data...
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Study: Brand Name Drugs Drive Up Medicare Spending
A new study suggests that cash-strapped Medicare missed an opportunity to save more than $1 billion by not addressing the varying costs and use of prescription drugs. Read More »
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Suber: Leader Of A Leaderless Revolution
What is remarkable about the open access (OA) movement is that despite having no formal structure, no official organization, and no appointed leader, it has (in the teeth of opposition from incumbent publishers) triggered a radical transformation in a publishing system that had changed little in 350 years... Read More »
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Sunlight Foundation's Eric Mill Scouts Out New Developments in Government
Scout rapidly searches all kinds of government activity—bills, regulations, speeches—at the state and federal level, and can notify you about all of it.
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Tech Surge To Fix Healthcare Needed To Fix Our Broken Election Systems
As millions of Americans sign up for lifesaving healthcare, it is right that President Barack Obama ordered a "tech surge" to fix glitches in the healthcare.gov website. As the president said "we didn't fight this battle over as website" but as he knows, if the portal doesn't inspire confidence the policy can be attacked. [...] Read More »
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Technology Could Empower Africans To Hold Their Governments To Account
Mobile phones are almost ubiquitous across Africa but can citizens use this technology to better participate in democracy? Next year, South African citizens will take part in their fifth democratic election. While the African National Congress will undoubtedly triumph, it can no longer rest on its laurels. Read More »
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TED Video – Ushahidi’s Juliana Rotich Speaks About Brck, An Internet Access Modem Built For Africa
Juliana Rotich is co-founder and executive director of Ushahidi, a nonprofit tech company that develops free and open-source software for information collection, interactive mapping and data curation. Read More »
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Ten Simple Rules For The Open Development Of Scientific Software
Open-source software development has had significant impact, not only on society, but also on scientific research. Papers describing software published as open source are amongst the most widely cited publications [...]. It is surprising, therefore, that so few papers are accompanied by open software, given the benefits that this may bring. Read More »
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The 8 Steps to Amazon Entering the Health Care Market
This is a thought experiment: What if Amazon really wanted to go all in in the health care sector? What might that look like? What would their strategy be? Where could they deliver value? Amazon looks for industries that are not sensitive to the customer, that have profits or premium pricing based on barriers to entry (often capital related), and looks to exploit those opportunities. It’s pretty straight forward. And, whether that industry is cloud storage space or groceries or “last mile” distribution networks, Amazon is thinking about it...
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The Best Governance For Medicines ... Is In Thailand
Here in the US, a lot of people have been convinced that we have the best health care system in the world... Read More »
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The Culprit Behind High U.S. Health Care Prices
Elizabeth Rosenthal’s eye-opening article about health care costs in The New York Times on Sunday was a reminder of how much more Americans pay for given procedures than citizens in health systems abroad. What was probably more surprising to most readers was the huge price differentials for identical procedures... Read More »
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The Current State of Open Data in the US Government
In this article I will discuss the importance of open data in government, the current state of open data in government, and what we need to do to implement true open data. When I read an article on the Center for Data Innovation site, Congress Is Stepping Up to Protect Open Data, I was struck by two feelings: elation and surprise... The article links to a 2013 McKinsey report, Open data: Unlocking innovation and performance with liquid information, that says the national open data initiative of "open by default" represents real economic and transparency value for the public. The report points out that there is no assurance that open data will survive the end of the current administration...
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