transparency
See the following -
Crossing The Digital Health Chasm Between Consumers And Providers – Talking With Dr. Eric Topol
More than twice as many patients than physicians are embracing consumers’ use of new digital technologies to self-diagnose medical conditions on their own. On the other hand, 91% of doctors are concerned about giving patients access to their detailed electronic health records, anticipating patients will feel anxious about the results; only 34% of consumers are concerned about anxiety-due-to-EHR-exposure...
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Crowdfunding For Innovation And Sustainability
Kickstarter has just hit the UK, but there are now a host of crowdfunding startups that focus on business creation and innovation Read More »
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Customer Says eClinicalWorks Holding Patient Data 'Hostage'
As eClinicalWorks faces a possible class action lawsuit and the potential for clients to switch to rival EHR vendors, some customers are coming forward with complaints about their treatment. The company countered that it is still signing up new healthcare organizations and at least one user has noticed the vendor changing its ways. At May’s end, the U.S. Department of Justice – in a settlement that included a $155 million fine – mandated that the EHR vendor either upgrade existing customers' software for free or transfer their data to a rival’s electronic health record platform...
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Cuts to E-Gov Fund Could Slow Federal Cloud Transition
Current funding levels for electronic government initiatives in the House and Senate Appropriations committees could cripple the government's ability to modernize federal information technology and thereby save money in the long run, a General Services Administration official told lawmakers Wednesday. Read More »
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Dataset Tracks World’s Open Government Data
The Global Open Data Index, a crowdsourced project launched by the Open Knowledge Foundation, released its 2014 dataset ranking 97 world governments on the openness of their data across 10 categories...
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Day 2 @ TEDMED 2013, Washington D.C. #LiveUpdate.
There is a lot of discussion about data here at TEDMED 2013, and this is no great surprise. Big data, small data, open data, crowdsourced data – this is the information backbone of science and the key to breakthroughs and innovation. Read More »
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Demand Better: Making Government More Open And Accountable
When President Obama extolled the virtues of open data in government in a 2010 speech before the United Nations, he created opportunities for hackers, entrepreneurs and governments at all levels to embrace innovation through radical shifts in information exchange. [...] Read More »
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Did You Know John Roberts Is Also Chief Justice Of The NSA’s Surveillance State?
The 11 FISA judges, chosen from throughout the federal bench for seven-year terms, are all appointed by the chief justice. In fact, every FISA judge currently serving was appointed by Roberts, who will continue making such appointments until he retires or dies. FISA judges don’t need confirmation — by Congress or anyone else... Read More »
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Digital Rights Groups Shut Out Of Secret TPP Negotiations
Right now, EFF representatives in Auckland, New Zealand are being shut out of the 15th round of the Trans-Pacific Partnership agreement (TPP), a secretive, multi-national trade agreement that threatens to extend restrictive intellectual property (IP) laws across the globe. Read More »
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Distributed Ledgers, the Next Step in Patient Generated Health Data (PGHD) - Part 2
An associate of mine provided good feedback on my previous post on Pulse, he disagreed with me in earnest and stated that Blockchain/ Distributed Ledger (DL) wasn't a good platform for storing PGHD (Patient Generated Health Data). I appreciated his comments, I decided to provide a bit more context and information. For those of you that are not familiar with Distributive Ledgers, they are the technology that support Blockchain, which is the foundation of Bitcoin. Basically, Distributive ledgers are an add-hoc standard database with security, transparency and access control more or less built in...
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Distributed Ledgers, the Next step in Patient Generated Health Data (PGHD) Including Environmental Data
Soon we will be able to access thousands of datapoint into our lives, many will reflect our environment and health. The HHS Idea Labs held a Entrepreneur-in-Residence webinar on December 13, 2016, for recruiting an software architect to assist the National Institute for Occupational Safety and Health (NIOSH) in collecting employment data as it pertains to a persons health. They wish to share/store the collected data in the EHR. Onerous at best, because most EHR today do not have API for uploading data and HL7 standards do not currently provide for discreet PGHD data...
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DIY Healthcare: Going Beyond WebMD
Despite all the hoopla about the Affordable Care Act, and what it will mean for the U.S., the fundamental experience of going to the doctor hasn’t changed and while innovation and experimentation are inherent to the field of medicine, they aren’t as common in how healthcare is delivered. Read More »
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DIY Internet Of Things: The Ultimate Maker Project
Last week, word dropped of how the folks at Spark, creators of an Arduino-compatible board for creating homebrew Internet-connected hardware (the Spark Core), had hacked together an open source digital thermostat. Read More »
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Do We Need Five-Star Open Development?
According to Beth Noveck open data can probably not make government more transparent and accountable. Instead, she holds the value of open data is primarily in making use of the wisdom of crowds to solve complex problems in society. Read More »
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Doctors Given Meals by Drug Makers Prescribed More of Their Pills
Doctors who were fed meals costing even less than $20 later prescribed certain brand-name pills more often than rival medicines, according to a new analysis published on Monday of a federal database. And in most cases, costlier meals were associated with still higher prescribing rates for Medicare Part D drugs made by the same companies that provided the food. The findings, published in JAMA Internal Medicine, are likely to intensify an ongoing debate over the extent to which ties between drug makers and doctors unduly influence medical practice and the nation’s health care costs...
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