Amy Maxmen
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Mycetoma: The Untold Global Health Story of 2015
“It is unjust that people don’t care about this disease.” Writer Amy Maxmen’s words keep surfacing in my thoughts. She said this after her trip to Sudan to report on mycetoma, a flesh-eating, bone-destroying disease that spreads misery across 23 countries from Mexico to India. Although it’s exacted a horrific toll on human lives for centuries, very little is known about its prevalence or etiology. Bacterial or fungal in origin, the disease starts with a skin infection that over time grotesquely swells feet and other appendages. It erupts in painful lesions on the skin even as it destroys the bones within. Often the only treatment is amputation. Sometimes the disease proves fatal...
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The Opposite of Martin Shkreli: Drug Development Without Profit
From inside the van, Nathalie Strub Wourgaft watches the scene unfold in silence. She looks tired, and a little tense. Wourgaft is the medical director of a Geneva-based organization devoted to developing treatments for syndromes that afflict the poor, called the Drugs for Neglected Diseases initiative (DNDi), and she is in Sudan for just 3 days to scope out the setting for a clinical trial that will be the first of its kind. By May, Wourgaft and a Sudanese surgeon, Ahmed Fahal, hope to test a new drug for a potentially lethal, flesh-eating fungal infection called mycetoma...
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