anonymized health data
See the following -
Eaten Alive: A Patients’ Perspective on De-Identification of Personal Health Information
In 2018, the majority of people do not know that their PHI, like their EHR data, prescription data, insurance claims, and genetic data via direct-to-consumer (DTC) tests, are de-identified and sold for research and commercial purposes at massive profits. Medical health data trading is a multi-billion dollar industry. The process of de-identification supplies data that may be aggregated for a variety of analyses, such as basic scientific discoveries, policy & legal reviews, process refinement, pharmaceutical marketing, and other efforts. Data de-identification isn’t new but it is rampant. I’m gravely concerned about the free-for-all that is de-identification. You should be too.
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You Should Control Your Own Health Care Data
If you have ever stayed at a hospital, visited a physician's office or filled a prescription at a U.S. pharmacy, your medical information – stripped of identifying data – is most likely collected, shared and analyzed for various medical and marketing purposes. Your data may have helped a pharmaceutical company sell more drugs, a researcher find a better treatment option for a disease or a government agency predict the next flu outbreak. This is done through a multibillion-dollar industry that feeds on your medical data and reaps millions of dollars from analyzing it, without asking your permission or sharing the resulting profits with you...
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