data standards
See the following -
A Global Alliance for Genomic Data Sharing & Standards
In June, a group of 70 hospitals, research institutes, and technology companies from 40 countries formed the Global Alliance (pdf), a consortium to promote open standards and best practices for organizations producing, using, or sharing genomic and clinical data. Read More »
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Australia's Digital Health Strategy Gets the Nod Without Data Interoperability Controls
My Health Record, the Australian government's e-health record system, has been officially given the green light from the Council of Australian Governments Health Council to automatically sign citizens up to the service, allowing them to opt-out if they choose. By 2018, all Australians will have a My Health Record and by 2022, all healthcare providers will be able to contribute to and use health information in My Health Record on behalf of their patients. They will also be able to communicate with other healthcare providers on the clinical status of joint patients via the digital platform...
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Bringing Order to Potential Confusion of Gene Data
Scientists from research and health-care groups including Harvard University and the U.S. National Institutes of Health [NIH] are trying to create a way to standardize and share genetic information before the DNA-scanning field develops into a balkanized mess. Read More »
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CDC Stands Up New Disease Forecasting Center - To Use Open Source Software and APIs to Expand Data Interoperability
Today, the Centers for Disease Control and Prevention (CDC) is announcing a new center designed to advance the use of forecasting and outbreak analytics in public health decision making. Once established, the Center for Forecasting and Outbreak Analytics will bring together next-generation public health data, expert disease modelers, public health emergency responders, and high-quality communications, to meet the needs of decision makers. The new center will accelerate access to and use of data for public health decision-makers who need information to mitigate the effects of disease threats, such as social and economic disruption.
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CDISC and TransCelerate Announce New Standard for Breast Cancer to Support Data Sharing for Oncology Research
The need to rapidly and efficiently share new data in cancer research was recently, and powerfully, highlighted by U.S. Vice President Joe Biden as part of the Cancer Moonshot initiative. The Clinical Data Interchange Standards Consortium (CDISC) and TransCelerate BioPharma, Inc. (“TransCelerate”) announce today the open availability of a new CDISC Therapeutic Area (TA) Standard for Breast Cancer. The CDISC global TA standards can streamline the way clinical research is conducted so that data can be readily shared among clinicians, researchers and regulators around the world, thus leading to more rapid and “smarter” research...
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Computerization In Health Care Demands High Data Standards
Recent reports bookend the promise and peril of computerization and the electronic medical record in health care. On the truly positive side, the Mayo Clinic and UnitedHealth Group have teamed up to form Optum Labs, a research group aimed at mining (initially) claims records for over 100 million people and 5 million clinical records... Read More »
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DoD, VA EHR Projects Must Focus On Interoperability
The Department of Defense and Department of Veterans Affairs must not lose sight of the ultimate goal of interoperability in their pursuit of their electronic health record systems, lawmakers said in passing the 2014 Omnibus Appropriations Act in the House on Wednesday. Read More »
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GSA Unveils Data Federation Portal
A day after the White House convened an Open Data Innovation Summit to discuss its work to structure and share government data, the GSA unveiled a new effort to highlight emerging data standards and API initiatives across federal, state and local government. The Open Data Summit on Sept. 28, co-hosted by White House, the Small Business Administration, the General Services Administration and the industry-backed Data Foundation, showcased cutting-edge uses of open data driving government efficiency, innovation and economic opportunity for the public...
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HIMSS19: What to Look Out For
The 2019 HIMSS Annual Conference and Exhibition is in many ways a daunting event. Upwards of 40,000 people will likely attend this combination of educational experience, trade show, and overall shmooz-fest. But many people who go to this conference have a tough time: its sheer size can be quite overwhelming. There are pre-conference symposia, popular and important keynote speakers, educational sessions along with a myriad of topical tracks, and a massive exhibition hall that runs the full length of the Convention Center. Here are some of the things I'll be looking for this year to try to focus my activities...
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How Does FHIR Fit into Recent Interoperability Initiatives?
Over the past few months, APIs have been the talk of the healthcare industry, pushing HL7's FHIR into the spotlight for interoperability. Plenty of talk supports the position that application programming interfaces (APIs) will enhance health data interoperability, particularly a leading API standard known as FHIR. Health Level 7’s Fast Healthcare Interoperability Resource (FHIR) is a data standard that helps different health applications work on the different interfaces that exist in the industry (such as an Epic Systems or a Cerner interface)...
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How to Prepare for the API Requirements of the Cures Act
As of April 5, 2021, the U.S. ONC Cures Act Final Rule Compliance Timeframe is in effect. Healthcare providers, Health IT developers, Health Information Exchanges (HIEs), and Health Information Networks (HINs) will have until October 6, 2022, to provide patients with access to all their Electronic Health Information (EHI). There are several requirements that providers, developers, and exchanges must adhere to. Among them are Conditions and Maintenance of Certification requirements for Information Blocking, Communications, and Application Programming Interfaces (APIs). To help you navigate this compliance timeframe, we've asked our J P System's HL7 FHIR® expert, Jay Lyle, what does one need to know about APIs and data standards. Jay has been co-chair of the HL7 Patient Care Work Group for 8 years and is an expert in HL7 data standards development and APIs.
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NIH Unveils Precision Medicine, Genomics, Big Data Analytics Plan
The National Institutes of Health (NIH) has published a detailed framework outlining its vision for the development of its Precision Medicine Initiative, a wide-ranging research program that hopes to integrate healthcare big data analytics, advances in genomics, and targeted therapies into real-world clinical applications...
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ONC Details Plan to Improve Data Standards, Big Data Analytics
ONC has proposed several pieces of legislation promoting better and more effective data standards for health information exchange, which would help to support the use of healthcare big data analytics to improve patient care. According to a recent blog post published by ONC’s Karen Desalvo and Lisa Lewis, the agency has proposed several pieces of legislation in an effort to keep pace with the quick evolution of healthcare IT...
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Op-Ed: Open Data Policy Has Far-Reaching Implications For Health Care
In May 2013, the [OMB] released an executive order that requires federal agencies to use machine-readable and open formats -- in addition to data standards and other regulations -- for creating and collecting information. This new policy will have a significant impact on how public and private organizations access and leverage information. Read More »
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OSS Procurement FAQ: Part 3
In-house development. This phrase can often give developers a sense of freedom while also causing panic. Sure, there’s the basic activities of requirements gathering, development, testing, and deployment, no matter what development process or technology you plan to use. But, beyond that, then what? Read More »
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