ethics
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Academic Pirates Trade Science Articles
Those in the medical field may be illegally distributing academic journal articles, a recent report reveals. Read More »
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Academics Agree MIT Should Have Done More For Aaron Swartz
In late July, MIT issued its report, written by computer science professor Hal Abelson, on the university's own actions in the Aaron Swartz case. Swartz, an information activist, faced extensive charges for downloading a huge number of academic articles from the online service JSTOR over MIT's network. Swartz committed suicide in January. Read More »
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Before The Prescription, Ask About Your Doctor's Finances
At the dawn of managed care, worried patients wanted to know whether their doctors were getting paid more to do less. Now, as many doctors' salaries depend on how many procedures they perform, patients want to know whether their doctors are paid more to do more. Read More »
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Big Ethics for Big Data
As the collection, organization and retention of data has become commonplace in modern business, the ethical implications behind big data have also grown in importance. Who really owns this information? Who is ultimately responsible for maintaining it? What are the privacy issues and obligations? What uses of technology are ethical — or not — when it comes to big data?
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Data Scientists Create Code Of Professional Conduct
Big data practitioners develop data science guidelines for a profession where, they say, ethics are often lacking. Read More »
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Despite Scandal, Former UnitedHealth CEO Was Ninth Best Paid CEO Of The Decade
A little while ago, the Wall Street Journal reported on the highest paid US corporate CEOs of the past decade. One name stood out for those interested in health care: Dr William W McGuire, the former CEO of giant health care insurance company/ managed care organization UnitedHealth Group. [...] Read More »
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Doctors And Hospitals Got At Least $3.5 Billion From Industry In Just Five Months
...Lawsuits in recent years revealed that doctors' relationships with industry can alter their prescribing practices and decision-making for the worse, and pharmaceutical companies have paid out billions of dollars in fines for fraudulent marketing practices...
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Drug And Device Studies Being Withheld Illegally
Randomized clinical trials are a critical means of advancing medical knowledge. Clinical trials depend on the willingness of participants to expose themselves to the risks of randomization, blinding, and unproven interventions. The ethical justification for these risks is that society will eventually benefit from the knowledge gained from the trial. [...] Read More »
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Enunciation On Open Access: The Practitioners’ Perspective
A continually growing body of student organizations, as well as scientists, have been advocating for an Open Access to scientific publications. The European Federation of Psychology Students Associations (EFPSA) has been part of this effort for a long time and this blog hosts an extensive cover of the numerous aspects of the Open Access initiative... Read More »
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Ethics And Risk In Open Development
Ethics around ‘opt in’ and ‘opt out’ when working with people in communities with fewer resources, lower connectivity, and/or less of an understanding about privacy and data are tricky. Yet project implementers have a responsibility to work to the best of their ability to ensure that participants understand what will happen with their data in general, and what might happen if it is shared openly...
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Genomic Medicine Open For Business: Lessons Learned In The Clinic
The Medical College of Wisconsin (MCW), in conjunction with Children’s Hospital of Wisconsin and Froedtert Hospital, was the first in the nation to launch a genomic medicine clinic, and to offer whole genome sequencing clinically to patients on “diagnostic odysseys.” Read More »
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Health Committee: Hidden Trial Data Should Be Opened Up
The pharmaceutical industry should introduce a new code of practice, ensuring negative trial data cannot be hidden, according to the government’s Health Committee. Read More »
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Hospital Chain Inquiry Cited Unnecessary Cardiac Work
In the summer of 2010, a troubling letter reached the chief ethics officer of the hospital giant HCA, written by a former nurse at one of the company’s hospitals in Florida. In a follow-up interview, the nurse said a doctor at the Lawnwood Regional Medical Center, in the small coastal city of Fort Pierce, had been performing heart procedures on patients who did not need them, putting their lives at risk. Read More »
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If An Experiment Fails In A Forest, Does Anyone Hear?
[To] my way of thinking, if you are a technologist then there is no choice but to practice Open Science. Anything else is tantamount to arguing that a witch weighs the same as a duck. Read More »
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Information Wants To Be Complex
Questions lead to answers that lead to more questions. Tactical Tech Info Activism Camp has a number of tracks: Documentation, Investigation, Curation, and Beautiful Troublemakers. I joined the “microscopes are us” evidence team aka Documentation. [...] Read More »
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