Lara Mangravite
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Health Data Should Belong to Patients, Topol Argues
The digital revolution’s merging of medicine with high tech has unleashed massive amounts of data about the most intimate details of our life — what we ate, how far we walked, how fast our heart beat. As a result, what constitutes health data is no longer so easily defined. Neither is how the information is used. With rise of machine learning, those questions are becoming increasingly urgent, especially with the move of high tech companies into the clinical sphere, according to health data transparency advocate Dr. Eric Topol...
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Pharma, Data Veteran Stephen Friend Bites At Apple’s Health Offer
Consumer tech giant Apple, which has spent considerable effort positioning its products as health and fitness helpers, has just hired someone who knows Big Pharma and Big Data. Stephen Friend, a veteran of drug R&D and, more recently, a nonprofit effort to foster more collaborative biomedical research and more data sharing, is joining Apple in an unspecified capacity. The news emerged today from Sage Bionetworks, the Seattle nonprofit that Friend founded after leaving drug giant Merck, where he was a senior research executive for eight years...
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Sage Bionetworks Advocates for Open Systems in Health Research
Sage Bionetworks, a nonprofit biomedical research organization, continues its work to redefine the way in which health data is gathered, shared and used through the use of open systems, incentives and norms. In a Nature commentary published today, a set of governing principles for digital health data analysis that are designed to maximize the contribution of large-scale digital data to advancing medical care are described. This commentary was co-authored by John Wilbanks, Chief Commons Officer at Sage Bionetworks and Eric Topol, MD, Director of the Scripps Translational Science Institute, and Chief Academic Officer of Scripps Health. The two work together on the NIH-funded Precision Medicine Initiative that was announced earlier this month.
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Two Years In, What Has Apple ResearchKit Accomplished?
In March 2015, Apple promised to change the way medical research could be done. It launched ResearchKit, which could turn millions of iPhones around the world into a “powerful tool for medical research,” the company said at the time. Since then, ResearchKit — software that gives would-be app developers a library of coding to create health apps on the iPhone and Apple Watch — has spawned a number of studies: One team has used it to create an app to track Parkinson’s symptoms; another is trying out a screening protocol for autism. A third helps people inventory the moles on their skin and evaluate how they have changed over time...
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