patients' right of consent

Leonard Kish talks with patient privacy advocate and expert, Dr. Adrian Gropper, about his work in providing better patient control over their health data and the role of agency, identity and existing internet tools to fulfill better patient control. Dr. Gropper's take on The Pledge for interoperability and patient access: it's a deflection to try to skirt around government action. According to Gropper, who was interviewed during the HIMSS16 conference, the patients' right of consent around their data has been seen as too risky, but the converse is now that there is zero accountability and massive amounts of data are being sold on the black market.

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