Scripps Translational Science Institute
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EMSI to Support Sample Collection for the National Institutes of Health's All of Us Research Program
EMSI, a medical information service provider mobilizing networks of technology-enabled health professionals and trained phlebotomists, will engage thousands of direct volunteers in their homes for the ambitious All of Us Research Program, a historic medical research effort led by the National Institutes of Health (NIH)...Precision medicine is an approach to disease treatment and prevention that takes into account individual variability in environment, lifestyle and genes. The All of Us Research Program, which is part of the Precision Medicine Initiative, will lay the foundation for using this approach in clinical practice...
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Health Data Should Belong to Patients, Topol Argues
The digital revolution’s merging of medicine with high tech has unleashed massive amounts of data about the most intimate details of our life — what we ate, how far we walked, how fast our heart beat. As a result, what constitutes health data is no longer so easily defined. Neither is how the information is used. With rise of machine learning, those questions are becoming increasingly urgent, especially with the move of high tech companies into the clinical sphere, according to health data transparency advocate Dr. Eric Topol...
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More Research Volunteers Are Getting Their Medical Test Results. Should We Cheer — or Worry?
Volunteer for a clinical trial and your body will be poked, prodded, scanned, and analyzed. But you’re unlikely to get any of the results. A small but influential band of activists has been pushing hard to change that — and they’re starting to get traction. The research establishment has long opposed giving volunteers access to their data, even though that’s supposed to be part of the arrangement. Some worry that it’s too easy for laypeople to misinterpret test results, while others maintain that it’s a waste of resources to organize data for individual review...
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Sage Bionetworks Advocates for Open Systems in Health Research
Sage Bionetworks, a nonprofit biomedical research organization, continues its work to redefine the way in which health data is gathered, shared and used through the use of open systems, incentives and norms. In a Nature commentary published today, a set of governing principles for digital health data analysis that are designed to maximize the contribution of large-scale digital data to advancing medical care are described. This commentary was co-authored by John Wilbanks, Chief Commons Officer at Sage Bionetworks and Eric Topol, MD, Director of the Scripps Translational Science Institute, and Chief Academic Officer of Scripps Health. The two work together on the NIH-funded Precision Medicine Initiative that was announced earlier this month.
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