Stephen Friend
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Apple Just Hired a Guy Who Could Completely Re-Invent the Company
Apple is quietly building one of the strongest teams in digital health, and on Thursday, it just added perhaps its most high-profile hire yet. Stephen Friend, co-founder and President of Sage Bionetworks, is joining Apple's healthcare team, Sage Bionetworks announced on Thursday. Apple said it had “nothing more to share about his role or title." Before Sage, Friend was an executive at Merck and a faculty member at Harvard Medical School...
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CEO Roundtable On Cancer Launches The Project Data Sphere Initiative, A New Data Sharing And Analytic Platform For Cancer Patient Benefit
Project Data Sphere, LLC (PDS), an independent not-for-profit initiative of the CEO Roundtable on Cancer’s Life Sciences Consortium (LSC), announced today the launch of a new data sharing platform (www.ProjectDataSphere.org), with the goal of advancing research to improve the lives of cancer patients and their families around the world...
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Evolving Patient Rights In The Research And Delivery Of Health Care
...As the idea reached the proscenium this month at the Health Datapalooza, a conference founded by the US Department of Health and Human Services and now attracting more than 2,000 people, patient empowerment marks its entry into the mainstream...
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Healthcare Lessons from the Data Sages at Strata
Most healthcare clinicians don't often think about donating or sharing data. Yet, after hearing Stephen Friend of Sage Bionetworks talk about involving citizens and patients in the field of genetic research at StrataRx 2012, I was curious to learn more...With this in mind, I arrived at this February's Strata conference wondering what I could extrapolate from other more sophisticated data users to healthcare.
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Pharma, Data Veteran Stephen Friend Bites At Apple’s Health Offer
Consumer tech giant Apple, which has spent considerable effort positioning its products as health and fitness helpers, has just hired someone who knows Big Pharma and Big Data. Stephen Friend, a veteran of drug R&D and, more recently, a nonprofit effort to foster more collaborative biomedical research and more data sharing, is joining Apple in an unspecified capacity. The news emerged today from Sage Bionetworks, the Seattle nonprofit that Friend founded after leaving drug giant Merck, where he was a senior research executive for eight years...
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Sage Bionetworks Releases First-of-its-Kind Data from Parkinson’s iPhone Study
Sage Bionetworks, a nonprofit biomedical research organization, today released an unparalleled dataset that captures the everyday experiences of more than 9,500 people to help speed scientific progress toward treatments for people with Parkinson’s disease. The dataset, which consists of millions of data points collected on a nearly-continuous basis through the iPhone app mPower, will provide researchers with unprecedented insight into the daily changes in symptoms and effects of medication for people with Parkinson’s.
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Sequencing, cloud computing, and analytics meet around genetics and pharma Bio-IT World Shows What is Possible and What Is Being Accomplished
Bio-IT World shows what is possible and what is being accomplished...last week I took the subway downtown and crossed the two wind- and rain-whipped bridges that the city of Boston built to connect to the World Trade Center. I mingled for a day with attendees and exhibitors to find what data-related challenges they’re facing and what the latest solutions are. Here are some of the major themes I turned up...
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Team Taps The Wisdom Of The Crowd To Impact Breast Cancer Prognosis
Two new reports issuing in Science Translational Medicine (STM) today showcase the potential of teams of scientists working together to solve increasingly complex medical problems. The results demonstrate that better predictors of breast cancer progression than those currently available can be rapidly evolved by running open Big Data Challenges [...]. Read More »
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Thomson Reuters Tackles Open Access Datasets With Data Citation Index
This month, Thomson Reuters began a soft launch of its new Data Citation Index, which is intended as “a comprehensive view of scholarly research bringing research data into the same arena as the published literature it supports. Read More »
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Timeline: How Apple Is Piecing Together its Secret Healthcare Plan
Rumors are at a fever pitch that Apple has big plans for healthcare, including putting a medical record on the iPhone, possibly acquiring its way into the EHR market. From its leap into healthcare in 2014 with its HealthKit application programming interface in September 2014 to the June 19 revelation of Apple’s work with the tiny start-up Health Gorilla, Apple has made a series of moves in healthcare that clearly indicate the company has plans for the space that will somehow manifest on its mega-popular iPhone and iPad products. Here’s a look at how Apple got to where it is today in healthcare...
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Yes, You Can Reconcile The Wide Sharing Of Personal Medical Research Data With Greater Participant Control
Although the benefits of sharing big datasets are well-known, so are the privacy issues that can arise as a result. The tension between a desire to share information widely and the need to respect the wishes of those to whom it refers is probably most acute in the medical world. Although the hope is that aggregating health data on a large scale can provide new insights into diseases and their treatments, doing so makes issues of consent even trickier to deal with. A new study of Parkinson's disease from Sage Bionetworks, which describes itself as a "non-profit biomedical research organization," takes a particularly interesting approach. Unusually, it used an iPhone app to gather data directly from the participants...
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